Social media posts for
HAEi Member Organizations
We’re very proud of our HAE TrackR app and the different languages that you, our Member Organizations, have helped us to make available. We want to share this news as much as possible and encourage as many people with HAE to try the app.
HAEi has created these social media posts for you to translate – or use as inspiration to create your own – and share via your own organization’s social media channels. You can use the translation option of this website to have the draft in your local languages.
Please note when translating: Twitter has a limit of 280 characters, including spaces.
This resource contains four (4) social media posts:
- Take control of your HAE using HAEi’s new HAE TrackR app
- Good news: HAE TrackR is available in [insert local language]
- Heard about the new HAE TrackR app and wondering if it is safe to use?
- HAEi resources to help you use HAE TrackR – download the HAE TrackR app to your phone for easy access
And images that you can use free of charge – see gallery.
Post #1
Take control of your HAE using HAEi’s new HAE TrackR app
The HAEi HAE TrackR app is a free and easy-to-use electronic diary that enables you to input and store highly relevant data about your HAE to give you an overview of your HAE, treatment, and how HAE affects your life.
It is really easy to use: With only a few steps, you can register attacks, improvements, and both prophylactic and acute treatments.
The app allows you to share the data with your physician and will serve as a valuable tool that you and your physician can use to make important decisions on how best to manage your HAE.
HAE TrackR is available in [insert local language]. Choosing [insert local language] is very easy: you simply select it from the drop-down menu before you sign in.
Many of our members are using the app and taking control of their HAE. You can find out more and get started here >> https://haetrackr.org/
Twitter:
Take control of your HAE with HAE TrackR: a free & easy-to-use electronic diary. You can add & store data to give an overview of your HAE, treatment & how HAE affects your life. HAE TrackR is available in [insert local language]. Read more & access it here: https://haetrackr.org/
Post #2
Good news: HAE TrackR is available in [insert local language]
HAEi’s HAE TrackR app is a free and easy-to-use electronic diary that enables you to input and store highly relevant data about your HAE to give you an overview of your HAE, treatment, and how HAE affects your life.
And it’s available in [insert local language]!
Choosing [insert local language] as your preferred language is very easy: Pick [insert local language] from the drop-down menu before signing in.
If you want to change the language once signed in, this is also very easy: Go to ‘My account’ in the menu and choose [insert local language].
HAE TrackR is available in [insert local language]! You can find out more and get started here >> https://haetrackr.org/
Twitter:
HAEi’s HAE TrackR is available in [insert local language]! Choosing [insert local language] is easy: Pick [insert local language] from the drop-down menu before signing in. Some of our members are using the app and taking control of their HAE. More info & get started here: https://haetrackr.org/
Post #3
Heard about the new HAE TrackR app and wondering if it is safe to use?
HAE TrackR is safe as data protection has been HAEi’s top priority when developing the HAE TrackR app.
All data gathered by the app is anonymized and your sole property. HAE TrackR is company and product neutral, GDPR compliant, and strictly protects your data and privacy.
No data is shared with anybody unless you decide to. For example, you can share it with your physician so you and your physician can use the data to make important decisions on how best to manage your HAE.
HAE TrackR is available in [insert local language]! You can find out more and get started here >> https://haetrackr.org/
Twitter:
Wondering if HAE TrackR is safe to use? In short: YES. The app is GDPR compliant & strictly protects your data & privacy. All data gathered is anonymized. No data is shared unless you decide to share it e.g., with your doctor. More info & get started: https://haetrackr.org/
Post #4
HAEi resources to help you use HAE TrackR – download the HAE TrackR app to your phone for easy access
On haetrackr.org you will find tutorials that show you how easy it is to download the app to your phone and how you can make regular entries of your HAE treatment (preventative and on-demand) and attacks.
We find HAE TrackR very helpful. It gives you an overview of your HAE, treatment, and the impact HAE has on your life and the life of your loved ones. The information you add to the app can be used by you and your physician (if you decide to share it) to make important decisions on how best to manage your HAE.
HAE TrackR is available in [insert local language]! You can find out more and get started here >> https://haetrackr.org/
Twitter:
HAEi has tutorials to show you how to easily download the HAE TrackR app to your phone & how you can make regular entries of your HAE treatments and attacks. There are many more resources available at: https://haetrackr.org/ HAE TrackR is also available in [insert local language].
Twitter:
We find HAE TrackR very helpful. It gives you an overview of your HAE, treatment & the impact HAE has on your life. The data you add can be used by you & your doctor (if you decide to share it) to make key decisions on how best to manage your HAE: https://haetrackr.org/
Gallery
Feel free to use these images for your social media posts
To download: Click on the download button over the image in the top left corner.
